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Health Research Matters! Without research, we won't discover more about diseases or new treatments and interventions. I'm passionate about ensuring that everyone who wants to participate in health research has the chance to, especially when it comes to clinical trials. A diverse participant base is crucial for ensuring the medicines are effective for everyone. That's why I've teamed up with pRxEngage , to help everyone get access to information about clinical trials that are currently running. You can use the search tool below to look for trials in your disease area and explore opportunities to participate. (In order to start searching, you will need to first consent to pRxEngage collecting your information by ticking the box in the search tool)

Trishna Bharadia is a multi-award winning patient advocate and patient engagement consultant. Find out more about her work and collaborating with her. TRISHNA BHARADIA MFPM(hon) Multi Award-Winning Patient Leader and Patient Engagement Professional Turning a life-changing diagnosis into a force for positive impact in healthcare, research and drug development WORKED WITH 100+ ORGANISATIONS ACROSS THE COMMERCIAL, CHARITABLE AND NON-PROFIT SECTORS WORKED WITH CLIENTS IN MULTIPLE COUNTRIES WORKED ON PROJECTS IN 30+ DISEASE AREAS Taking Action From campaigning in parliament to hosting webinars, find out more about my advocacy work. Becoming a patient engagement professional. Find out how I'm supporting multiple stakeholders to better embed the patient voice into healthcare, research and drug development Explore a selection of my published work, featuring peer-reviewed manuscripts. Dive into my media work... From radio interviews to features in the printed press. I've even popped up on TV—proof that I’m not just a face for radio! It has always been a privilege to be acknowledged for my work. Here are some of my proudest moments. Discover more about my journey... What inspired me to pursue patient advocacy and engagement? In 2008, in my 20s, I was handed life-changing news - a diagnosis of a disabling and degenerative neurological condition. I had no idea where to seek support and information and was faced with prejudice and stigma. Discover how I transformed this challenging experience into a catalyst for positive change. About Me Interested in participating in clinical research? Find out more here . Follow me on Instagram @trishnabharadia Load More "Trishna is a wonderful speaker who commands the stage with a natural ease. She is incredibly hard-working, generous, and unafraid to bring new ideas to the table. It's always a privilege to work with you Trishna!" -Senior Communications and Campaigns Manager Interested in working with me? You can contact me by emailing trishna@thesparkglobal.co.uk Let’s talk Let’s talk Let’s talk Let’s talk

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Back to Taking Action 10 Downing Street What is it like to visit the home of the British Prime Minister? It's a pretty special experience and I've had the honour of going twice! I first visited 10 Downing Street in September 2015, when I was asked to be the guest speaker at a reception for the MS Society, being hosted by the then Prime Minster's wife Samantha Cameron. I was asked to speak about the future of volunteering, having recently been awarded the MS Society's Volunteer of the Year Award, appeared on Strictly Come Dancing for my advocacy work, and been named a Woman of Achievement by the Women of the Year Foundation. It was an amazing experience and whilst I was really nervous, I had to keep pinching myself to check it was real! My second visit was equally as special because this time I got to take my Mum. She remembers visiting Downing Street in the 1950/60s when she first moved to the UK. That was when there was no security and it was like an ordinary street. But she'd obviously never been inside No.10 and I felt incredibly proud to have her accompany me to another MS Society reception, all about the progress in MS research. This time the reception was hosted by the then Prime Minister, Theresa May, who also has a personal connection to MS. It was another dreamlike experience and one that I will treasure forever!

Taking Action Explore the different ways I'm working for positive change LinkTree Advocacy Patient Engagement Publications Media Awards Interested in working with me? You can contact me by emailing trishna@thesparkglobal.co.uk Let’s talk Let’s talk Let’s talk Let’s talk

Interested in working with Trishna? Contact details on this page. Get in touch Get in touch Get in touch Get in touch I have worked with over 100 organisations across the commercial, charitable and non-profits sectors, in multiple countries and in 30+ disease areas. If you would like to find out more about working with me, please email trishna@thesparkglobal.co.uk Follow on social media Let's Chat!

Awards and honours for advocacy and patient engagement work. Awards & Honours PharmaVoice , PharmaVoice100 honoree (Disrupters category) – this is a global list of the top 100 inspirational and transformational change-agents in the life sciences industry UK Prime Minister’s Office , Points of Light Award for services to patient communities Faculty of Pharmaceutical Medicine (Royal College of Physicians) , Honorary Membership in recognition of contribution to patient engagement in the life sciences, MFPM(Hon) Women of the Year Foundation , Woman of Achievement International Society for Patient Engagement Professionals (ISPEP) , Honorary Member Precious Online , Winner, Precious Leadership Award Sue Ryder , Winner, Southern Women of Achievement Awards, Volunteers category We Are The City Ltd , Top 100 Rising Star Awards, Winner, Charity Category Excellence In Diversity Awards , Finalist, Diversity Champion (Private sector) Eyeforpharma , International Patient Advocate of the Year MS-UK , Friends of MS-UK Award for services to MS community Asian Achievers Awards , Woman of the Year WEGO Health , Winner, Healthcare Collaborator Award WEGO Health , Finalist, Lifetime Achievement Award x2 MS Society UK , Impact Award x2, Shining Star Award, Volunteer of the Year Award Medidata , EMEA Patient Advocate Award The Shaw Trust , Shortlisted, Disability Power 100 List

Advocacy PUBLICATIONS I've always loved to write and I've had the opportunity to put this to good use through my advocacy and patient engagement activities. From co-authoring peer-reviewed papers to writing a piece for the Huffington Post, here's a small selection of my written works. Click the images to go to the full article. For a complete list of my publications, please check out my ORCID ID Living with multiple sclerosis: the South Asian experience Patient authorship of medical research publications: An evolution, revolution and solution? Unmet Needs in the Healthcare Experience of Women of Childbearing Age with Chronic Disease and Recommendations for Change Understanding the Symptoms and Impacts Experienced by People with Relapsing–Remitting MS: A Qualitative Investigation Using Semi-Structured Interviews Tailoring STrAtegies for RelaTives for Black and South Asian dementia family carers in the United Kingdom: A mixed methods study Envisioning a Future for Including Patient Involvement in Vocational Training in the Life Sciences Industry Disease Progression in Multiple Sclerosis: A Literature Review Exploring Patient Perspectives Treating Multiple Sclerosis: We Need To Address Gaps In Care And Conversations

Learn more about Trishna Bharadia's advocacy work. My Advocacy Work What is advocacy? My definition is anything that someone does to raise awareness or promote change in their chosen area. I'm doing both! My Roles Public Speaking Campaigning Publications Media Work Voluntary Roles (past and present): Ambassador, MS Society UK Ambassador, MS Trust Ambassador, Sue Ryder Nettlebed Patron, Chilterns Neuro Centre Ambassador, ADD International Various roles, Asian MS Patron, Huntington MS Therapy Centre Governance Board Member, MS Centres of Excellence (MS Society) Advisory Board Member, Patient Information Forum Good Publication Practice Steering Committee, International Society for Medical Publication Professionals Co-Chair, Working with Patients & Communities Forum, The Faculty of Pharmaceutical Medicine Ambassador, ParaDance UK Steering Committee Member, MS Research Network, MS Society UK Member, EDI Reference Group, MS Society UK Patient Ambassador, Lyfebulb Stop MS Champion, MS Society UK Member, Technology Forum, MS Society UK Patient Engagement Editor, DIA Global Forum, Drug Information Association (DIA) Member, Patient Advisory Panel, Therapeutic Advances in Drug Safety, Sage Publications Editorial Board Member, "Neurology and Therapy," Springer Nature Member, "Road to Equality" National Taskforce on Diversity in Clinical Trials Member, European Advocacy & Outreach Committee and Patient Engagement Taskforce, ISMPP Member, ISMPP EU Meeting Planning Committee, ISMPP Co-production Group Member, Neurological Alliance Patient Communication Advisor, "The Research Post" Member, “Educate the public on data privacy and data sharing in clinical trials” working group, PHUSE Home Public Speaking Growing up, I was always incredibly shy. I still am a natural introvert, however, very soon after my diagnosis I discovered that when you have a passion and something you feel needs to be said, it can make you step out of your comfort zone . Public speaking used to terrify me. Don't get me wrong, I still get nervous, I think that's only human, but I thoroughly enjoy being able to connect with audiences, both in-person and virtually , and seeing how what I say impacts them and drives them to action or a change in thinking . Here's just a small sample of the over 200 events that I've spoken at or been the host for, and what I've talked about. “Giving patients a voice at scientific congresses,” NetworkPharma TV/Medcomms Forum webinar Can health literacy best practices in publications fuel innovation in patient-friendly electronic package information (ePI)?” ISMPP U webinar “Shared Experience: Who Cares? How can we better support caregivers to improve patient outcomes?,” Healthcare Communications Association webinar Volunteers Workshop – “Why volunteer?, MS Society UK's MS Life event “Why should businesses engage in volunteering,” Berkshire Means Business event “Tackling challenges positively when living with MS," MS Society 'Living with MS' information event “The importance of safeguarding people with disabilities,” Parliamentary launch of the Safer Sikhs Partnership by the Sikh Council UK “Calling for Backup – Support networks for young people with MS,” European MS Platform's 'MS Sessions' conference “New collaboration models with regulators and patients – digital health,” Drug Information Association's European Meeting “Living Positively with MS and Patient Advocacy,” internal meeting for World MS Day at a global pharma company Home Campaigning Throughout my advocacy work, I've actively campaigned for better services, information and support , dedicating my efforts to press for change for patient communities. My involvement has allowed me to listen to the needs and concerns patients, ensuring their voices are heard and represented. By collaborating with various organizations and stakeholders , I strive to create a more supportive and responsive healthcare environment. Together, we can make a difference and improve the quality of care for all patients . These are some of the campaigns I've been involved in.... Home #ThinkHand The #ThinkHand campaign was led by the Barts MS group and brought together multiple stakeholders to raise awareness of the importance of measuring upper limb function when testing MS disease modifying therapies in clinical trials. Historically, only limb function was measured. The campaign resulted in several trials utilising arm/hand function as a primary end point. Find out more Back the 1 in 6 The “Back The 1 in 6” campaign urged UK Governments to establish a Neuro Taskforce to tackle key challenges facing people affected by neurological conditions. One in six people in the UK live with a neurological condition. The campaign resulted in the establishment of the first ever UK-wide government forum focusing on services and support for neurological conditions. Find out more Stop MS Appeal The Stop MS Appeal is the most ambitious fundraising campaign ever embarked on by the MS Society. Launching in 2015, it aims to raise £100million within 10 years, to fund research to slow down or stop MS progression for everyone. Find out more Know Your Risk This campaign aimed to encourage people from communities at higher risk of Type 2 diabetes, including those of South Asian heritage, to check their risk. It was a social media campaign undertaken in collaboration with the NHS. Find out more Winter Vaccines A social media campaign to encourage those who are eligible to get their free winter vaccinations on the NHS, including Covid-19 and flu. It was particularly aimed at people who are eligible because of medical conditions or age. Find out more MS Enough Over the years, the MS Society's MS Enough campaign has tackled issues relating to MS and employment. I've given evidence on several occasions to the All Party Parliamentary Group on MS to contribute to this campaign. Find out more Move It For MS For MS Awareness Week in 2019, the MS Trust hosted an online inclusive Dance-A-Long. I vlogged for the charity about exercising whilst living with MS and I co-developed the Dance-A-Long together with Zumba with Anisha. Find out more Seat At the Table This was a fundraising campaign by ADD International that aimed to empower disability advocates in Bangladesh. It raised important awareness of the challenges faced by people with disabilities, particularly within Asian communities. Find out more

Patient Engagement Work Over the years, as I worked more with industry and other stakeholders in healthcare and life sciences, I came to realise that some were doing really well with their "patient-centredness" and others needed to improve. This led to me establishing The Spark Global, which brings together the experience of living with chronic disease with knowledge of strategic patient engagement consultancy and activities. The Spark Global's mission is to bridge the gap between patients and healthcare organisations, ensuring meaningful interactions that drive positive outcomes Click the images for more information! Consultancy services patient engagement strategy - building relationships with patient communities - clinical trial design - equity/diversity/inclusion in healthcare and research - individual projects involving patients e.g. advisory boards, patient councils, communication campaigns Health & patient information development Co-creating, reviewing, editing and advising on health literature/information (all formats), clinical trial documentation, patient engagement legal documents, plain language summaries of publications, patient surveys, website content (all media) and social media including paid partnership campaigns Speaker services Including but not limited to: conferences/congresses, events, internal and external meetings, webinars and podcasts Multimedia content creation Including but not limited to videos, blogs, articles and vlogs Media work Including but not limited to radio, television, printed press and podcasts

Learn about what led Trishna Bharadia into patient advocacy and engagement. Hello... Becoming a patient advocate was never in my life plan. I mean you don't go to university and study for it, do you? But being diagnosed with multiple sclerosis in 2008 has not only led to a life full of volunteering and advocacy, but has also changed my career path and led me into becoming a patient engagement consultant. Not bad given how scared and uncertain I was of the future when I was first diagnosed! My Story... In around 2005, I lost the strength in both my hands. I was finding it difficult to write and grip, even cutting up my food. At the time it was put down to repetitive strain injury, I had some physiotherapy and in time it got better. Little did I know then that it was likely the start of my journey with multiple sclerosis (MS). What does elephant skin feel like? This isn't a trick question! Fast-forward to 2007 and, after playing hockey one day, I felt a numb patch on my leg. Over about a week the patch spread to almost my entire left side. My skin felt thick like an elephant's and you could scratch me with a pin and I couldn't feel it. I was referred to a neurologist (a specialist doctor who is interested in the nervous system) and after about nine months, in which I'd experienced other sensory symptoms, had three MRI scans and a lumbar puncture (where they insert a needle in your spine to remove spinal fluid for testing) I was told I had relapsing MS. What is MS? MS is an autoimmune condition. This is where the immune system (the body's natural defence system against viruses, bacteria and infection) becomes faulty (we don't know why) and starts to attack healthy tissue. In MS, it attacks tissue called myelin (pronounced my-e-lin) which surrounds nerve fibres. It's much like the plastic casing of an electrical wire. Well, the nerves are the body's messaging system between the brain and the rest of the body. So when they become damaged, they can cause a range of different symptoms, depending on where in the brain and spinal cord the "lesions" (damage) has occurred. Symptoms can include pain, sensory issues, mobility issues, fatigue, bladder/bowel issues and problems with memory, thinking and concentration. Who gets MS? Typically, people start to develop symptoms in their 20s and 30s, and three times more women than men have MS. Globally, an estimated 2.9 million people have the condition. Initially, most people are diagnosed with relapsing MS, where we experience an acute attack of symptoms that gradually improve (or not) and may/may not leave lasting disability. Falling into a black hole... I knew very little about MS when I was diagnosed. Nor did my family. And unfortunately I received very little signposting to support and information. We were in a black hole and the experience felt very disempowering. My family and I went through a very steep learning curve, at a time when we were still coming to terms with the diagnosis itself, navigating new medications and side effects, and facing negativity from others. Inspired to make a difference My experience and desire to create change ignited my interest in advocacy. I began by volunteering with various MS patient groups and charities, which evolved naturally into collaborating with other communities and stakeholders, including clinicians, medical publishers, digital health and pharmaceutical companies. Advocacy and patient engagement have become central to my life, and I am thankful that my MS diagnosis has led me on this journey. Find out more about my work by clicking below! My Work Symptoms over the years I've experienced various symptoms over the years. Something that has been a permanent fixture is my fatigue. This isn't just ordinary tiredness, it's overwhelming and can be physical and mental fatigue. It's meant over the years I've had to adjust how I do things and what I do. For instance, how I work, exercise and socialise. Other symptoms have included bladder & bowel issues, the "MS Hug" (muscle spasms and pain in the little muscles in your rib cage), poor temperature regulation and Lhermitte's Sign (electric shock sensations when you flex your neck). MS can have an impact on so many aspects of your life so I've had to learn to adapt and know that it's OK to ask for help if I need it! Contact I'm always looking for new and exciting opportunities. Let's connect! trishna@thesparkglobal.co.uk

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Advocacy MEDIA WORK MEDIA WORK MEDIA WORK MEDIA WORK Media outreach is an incredible opportunity to raise awareness about issues. I've worked with radio, television, newspapers, magazines, blogs, podcasts, vlogcasts and more. Including... BBC News, BBC local radio, Sky News, The Chrissy B show, BBC1, State of Digital Clinical Trials podcast, Intertwined podcast, ITV, Metro, iNews, Which?, PharmaVoice, EMG Gold, WebMD Health, New York Times, Trial Talks podcast, The Publication Plan, TheMSGuide.com, Pharmaphorum Deep Dive, Woman's Weekly... and more. The People's Strictly for Comic Relief A selection of interviews... (click to read) “The added prejudice around Multiple Sclerosis,” Asian Voice “Advocacy across borders” MS Brain Chat podcast “After being diagnosed with a lifelong disease, I was told it was karma,” Metro “Multiple sclerosis is three times more common in women than men – but mine was misdiagnosed for years”, iNews “Do We Have The Right Understanding Of How Patients Perceive Digital Clinical Trials?” white paper by Kayentis “Patient partnerships in the COVID-19 era and beyond: insights from a Patient Engagement Champion,” The Publication Plan “Having #MS as an Asian comes with different challenges,” The MSGuide.com “Strong Women: ‘I lost all feeling in one side of my body at 28 – but MS won’t stop my fight,” Metro I talk to the Chrissy B show, alongside the MS Trust, all about living with MS I was interviewed by BBC News, alongside my sister, about what the lifting of Covid-19 mitigation measures mean for clinically vulnerable people

Trishna Bharadia's experiences of appearing on Strictly Come Dancing. Media Work "The People's Strictly for Comic Relief" In 2015 the BBC, for the first time ever, opened the doors of "Strictly Come Dancing" (the UK version of "Dancing with the Stars") ballroom to non-celebrities. We were six "ordinary members of the public who were doing extraordinary things." We were chosen out of over 11,000 nominations, selected for our charity work, giving back to the community, and overcoming adversity. How it began... In the middle of November 2014, my sisters persuaded me to have a "girl's night out" at what they said was the filming of a Zumba DVD. As one of my sisters is a Zumba instructor, it didn't sound at all strange. I almost didn't go though because it was a Friday night, I was exhausted after the working week and my MS fatigue was really kicking in. They managed to get me out of the house and over to Hammersmith, where we were greeted by the DVD "host" who was another Zumba instructor from London. There were little things that I thought were a bit odd - nobody had bottles of water, some people were wearing sparkly heeled dance shoes (not at all practical for Zumba) and I weirdly felt like people were looking at me (but told myself I was being paranoid!). This is what happened next..... Four months of hard work and fun! It was literally a dream come true doing Strictly. It was the hardest thing I've ever done: physically, mentally and emotionally! But everyone was so brilliant and supportive - my professional dance partner Aljaz Skorjanec, the production crew, the other five contestants, the other professional dancers, all the studio crew, my family, the public, the patient community.... the list goes on! I had four months of filming, dance training (I was dancing a jive), working full-time and managing my MS. So it was tough! But it was also the most amazing experience and I would do it again in a heartbeat! I was thrown into a world of glitter and sparkle, as well as hard work and dedication - I remember one day when my alarm was set for 4.30am and I didn't get to bed until 2am that night! Most importantly, it was a chance to share my MS story with millions of people in the UK and around the world. It opened up conversations and threw MS directly into the spotlight, raising awareness and educating about what it can be like to live with this condition. This gives you a flavour of what I got up to! I learnt all about the jive with my Strictly mentor Olympic gymnasting legend Louis Smith! It was all glamour and sparkle when we were filming the opening titles for the show... It was amazing to meet the other contestants and hear about the wonderful things they've been doing to help communities and those in need We even got the chance to dance for Strictly judge Craig Revel-Horwood at Wembley Arena! And we got a taste of celebrity life with numerous interviews in the press, TV and radio And suddenly it was Show Day! After months of training and filming, suddenly the show day was upon us! It was such a privilege to have the opportunity to dance on the famed Strictly dancefloor at Elstree Studios, with the live band and singers (abley led as always by Dave Arch) and to meet the other judges (Darcey Bussell, Bruno Tonioli, Len Goodman and Anton Du Beke), presenters Tess Daley and Claudia Winkleman, the rest of the production crew and be reunited with our Strictly mentors (Louis Smith, Alison Hammond, Lisa Riley, Jake Woods, Kimberly Walsh and Russell Grant). We were tanned, sparkled and had our costumes and makeup customised just for us. The team that goes into making this show is nothing less than extraordinary and everyone was just amazingly supportive and welcoming. We were joined in the studio by friends, family and lots of people who had applied for tickets. It was nerve-wracking but the most fabulous experience EVER! You can also find out more here . Watch Aljaz and I jive to "Runaround Sue" The Strictly group dances are legendary and this was no exception - it was the most number of dancers they'd had at any one time on the Strictly floor for a group dance to date! Explore the photo gallery Explore the photo gallery Explore the photo gallery Explore the photo gallery Scroll to the right for more...