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TRISHNA BHARADIA MFPM(hon)

Multi Award-Winning Patient Leader and Patient Engagement Professional

Turning a life-changing diagnosis into a force for positive impact in healthcare, research and drug development

WORKED WITH 100+ ORGANISATIONS ACROSS THE COMMERCIAL, CHARITABLE AND NON-PROFIT SECTORS

WORKED WITH CLIENTS IN MULTIPLE COUNTRIES

WORKED ON PROJECTS IN 30+ DISEASE AREAS

Taking Action

From campaigning in parliament to hosting webinars, find out more about my advocacy work.

Becoming a patient engagement professional. Find out how I'm supporting multiple stakeholders to better embed the patient voice into healthcare, research and drug development

Explore a selection of my published work, featuring peer-reviewed manuscripts.

Dive into my media work... From radio interviews to features in the printed press. I've even popped up on TV—proof that I’m not just a face for radio!

It has always been a privilege to be acknowledged for my work. Here are some of my proudest moments.

Discover more about my journey...

What inspired me to pursue patient advocacy and engagement? In 2008, in my 20s, I was handed life-changing news - a diagnosis of a disabling and degenerative neurological condition. I had no idea where to seek support and information and was faced with prejudice and stigma. Discover how I transformed this challenging experience into a catalyst for positive change.

MS Sessions, Prague 2017

MS Trust Annual Conference 2015

As an @mssocietyuk ambassador I’m often asked to visit the local groups or attend their events. It’s extra special when it’s a group that is actually local to me 😁 I really enjoyed attending the @mssocietyeastberks coffee morning with Mum. There was tea, coffee, cake and conversation (and some penguin bars!). It’s a great way to meet the local MS community. We also had a surprise for them as my parents’ former sports shop had been collecting money for the group through customer donations and the proceeds from the sale of a specific product. We were finally able to present the money raised (Covid had prevented this previously!) If you’re in the East Berkshire area then do check them out. The coffee mornings run every week apart from Christmas and New Year ☕️ Find out more or a group that is local to you via the MS Society’s website.

#multiplesclerosisawareness #multiplesclerosis #msawareness #mswarrior #multiplesclerosisfighter #msfighter #charity #charitywork #volunteering

As an @mssocietyuk ambassador I’m often asked to visit the local groups or attend their events. It’s extra special when it’s a group that is actually local to me 😁 I really enjoyed attending the @mssocietyeastberks coffee morning with Mum. There was tea, coffee, cake and conversation (and some penguin bars!). It’s a great way to meet the local MS community. We also had a surprise for them as my parents’ former sports shop had been collecting money for the group through customer donations and the proceeds from the sale of a specific product. We were finally able to present the money raised (Covid had prevented this previously!) If you’re in the East Berkshire area then do check them out. The coffee mornings run every week apart from Christmas and New Year ☕️ Find out more or a group that is local to you via the MS Society’s website.

#multiplesclerosisawareness #multiplesclerosis #msawareness #mswarrior #multiplesclerosisfighter #msfighter #charity #charitywork #volunteering

What do you know about neurological therapy centres? These are independent small charities with big hearts that are a lifeline for people affected by neurological conditions and I’m proud to be a patron of one. The @chilternsneuro caters for people affected by #multiplesclerosis #parkinson and #stroke providing support like #physiotherapy #hydrotherapy #counselling #arttherapy #pilates #oxygentherapy #seatedexercise and much more.

This year, the Summer Appeal celebrates the charity’s 40th anniversary. In the last year it has supported over 8,000 members via almost 17,000 appointments.

✅£4 could pay for a member to attend a specialist Parkinson’s exercise class

➡️£40 could pay for 4 people to attend a Falls Prevention session

🔘£400 could pay for someone to have 6 one:one physio sessions

All donations to the appeal will be gifted a limited edition beacon badge as modelled here by yours truly 🌟

Please consider supporting! Link to donate is in the Linktree in my bio ❤️

#charity #charities #charityappeal

What do you know about neurological therapy centres? These are independent small charities with big hearts that are a lifeline for people affected by neurological conditions and I’m proud to be a patron of one. The @chilternsneuro caters for people affected by #multiplesclerosis #parkinson and #stroke providing support like #physiotherapy #hydrotherapy #counselling #arttherapy #pilates #oxygentherapy #seatedexercise and much more.

This year, the Summer Appeal celebrates the charity’s 40th anniversary. In the last year it has supported over 8,000 members via almost 17,000 appointments.

✅£4 could pay for a member to attend a specialist Parkinson’s exercise class

➡️£40 could pay for 4 people to attend a Falls Prevention session

🔘£400 could pay for someone to have 6 one:one physio sessions

All donations to the appeal will be gifted a limited edition beacon badge as modelled here by yours truly 🌟

Please consider supporting! Link to donate is in the Linktree in my bio ❤️

#charity #charities #charityappeal

Podcasting again! This time I was having a chat with Barney Black from "MS Is Chronic" If you're a podcast aficionado then add it to your list! I talk about everything from my diagnosis, to advocacy, to Strictly Come Dancing, as well as quite a bit about why I'm so passionate about @asian_ms_society and what we do there. Link in the LinkTree in my bio! #multiplesclerosis #wehavems #stopms #mswarrior #chronicillness #spoonie #spoonielife #desiabled

Podcasting again! This time I was having a chat with Barney Black from "MS Is Chronic" If you're a podcast aficionado then add it to your list! I talk about everything from my diagnosis, to advocacy, to Strictly Come Dancing, as well as quite a bit about why I'm so passionate about @asian_ms_society and what we do there. Link in the LinkTree in my bio! #multiplesclerosis #wehavems #stopms #mswarrior #chronicillness #spoonie #spoonielife #desiabled

@asian_ms_society is looking for people to share their story in a new series that seeks to raise the voices of people from the Asian MS community. If you are interested, please email asianms@mssociety.org.uk or send them a DM!

We’re creating a new blog space to share stories by and for Asian people affected by MS , and we’d love to hear from you. 💬🧡

Whether you live with MS, care for someone who does, or want to raise awareness in your community, your story matters.

✨ What was it like getting diagnosed?
✨ How does MS impact your family, faith, or daily life?
✨ What keeps you going?
Your voice could help someone feel less alone.

Let’s make space for the stories that haven’t always been told. 💛

@asian_ms_society is looking for people to share their story in a new series that seeks to raise the voices of people from the Asian MS community. If you are interested, please email asianms@mssociety.org.uk or send them a DM!

We’re creating a new blog space to share stories by and for Asian people affected by MS , and we’d love to hear from you. 💬🧡

Whether you live with MS, care for someone who does, or want to raise awareness in your community, your story matters.

✨ What was it like getting diagnosed?
✨ How does MS impact your family, faith, or daily life?
✨ What keeps you going?
Your voice could help someone feel less alone.

Let’s make space for the stories that haven’t always been told. 💛

Posted with @regram
@asian_ms_society Living with Multiple Sclerosis can be tough—but within South Asian communities, cultural expectations can make it even harder.

💬 “What will people say?”
💬 “You don’t look ill.”
💬 “Just have faith, it’ll pass.”

From stigma around disability to pressure to stay silent, we know how complex these experiences can be.

At Asian MS, we’re here to break that silence—one conversation at a time. You are not alone.

🧡 Let’s talk about it.
📢 Tag someone who needs to see this.

#AsianMS #CulturalChallenges #MultipleSclerosis #MSAwareness #DisabilityInSouthAsia #MSCommunity #ChaiAndChat #SpeakUp

Posted with @regram
@asian_ms_society Living with Multiple Sclerosis can be tough—but within South Asian communities, cultural expectations can make it even harder.

💬 “What will people say?”
💬 “You don’t look ill.”
💬 “Just have faith, it’ll pass.”

From stigma around disability to pressure to stay silent, we know how complex these experiences can be.

At Asian MS, we’re here to break that silence—one conversation at a time. You are not alone.

🧡 Let’s talk about it.
📢 Tag someone who needs to see this.

#AsianMS #CulturalChallenges #MultipleSclerosis #MSAwareness #DisabilityInSouthAsia #MSCommunity #ChaiAndChat #SpeakUp

Today Dad and I were invited to talk to Pammi on @desiradiouk all about #multiplesclerosis and the work I’ve been doing to raise awareness, as well as the support that is offered by @asian_ms_society Desi Radio is a community radio station staffed by #volunteers that promotes #Punjabi language and culture. Although I can read and write Punjabi (a lot of people don’t know that!) my speaking is pretty awful 🙈 So Dad was on hand to not just speak from the #caregiver perspective but also to translate 😁 Thank you Pammi for having us and also Amar who did a wonderful job of looking after us while we waited to go on air! #charity #volunteering #msawareness #chronicillness #chronicillnessawareness #mswarrior #desiabled #msfighter #ms #wehavems #stopms

Today Dad and I were invited to talk to Pammi on @desiradiouk all about #multiplesclerosis and the work I’ve been doing to raise awareness, as well as the support that is offered by @asian_ms_society Desi Radio is a community radio station staffed by #volunteers that promotes #Punjabi language and culture. Although I can read and write Punjabi (a lot of people don’t know that!) my speaking is pretty awful 🙈 So Dad was on hand to not just speak from the #caregiver perspective but also to translate 😁 Thank you Pammi for having us and also Amar who did a wonderful job of looking after us while we waited to go on air! #charity #volunteering #msawareness #chronicillness #chronicillnessawareness #mswarrior #desiabled #msfighter #ms #wehavems #stopms

I was back at the eye clinic today for some follow-up treatment just under 2 years after my cataracts surgery. I had a common complication which meant light wasn’t getting to the retina and my vision had become blurred again. So I’ve had a type of laser treatment that creates holes in the lens capsule to let the light through 👀 Notice the arrow on my forehead to ensure they did the correct eye. I haven’t been able to scrub it off, despite trying 😂 #eyesurgery #cataract #cataracts #spoonie #autoimmune #spoonielife #chronicillnesswarrior #multiplesclerosis

I was back at the eye clinic today for some follow-up treatment just under 2 years after my cataracts surgery. I had a common complication which meant light wasn’t getting to the retina and my vision had become blurred again. So I’ve had a type of laser treatment that creates holes in the lens capsule to let the light through 👀 Notice the arrow on my forehead to ensure they did the correct eye. I haven’t been able to scrub it off, despite trying 😂 #eyesurgery #cataract #cataracts #spoonie #autoimmune #spoonielife #chronicillnesswarrior #multiplesclerosis

Had a lovely Sunday afternoon celebrating the 40th birthday of a charity that is not only incredibly close to my heart and has helped me live my best life with #multiplesclerosis but is also a charity that I’m a patron for. Thank you to the @lordlieutenant_bucks Elizabeth Howe for hosting @chilternsneuro for a birthday garden party! It was lovely to catch up with staff, volunteers and members of the centre, which provides support and therapies for people affected by MS, #parkinsons #parkinsonsdisease and #stroke It was also brilliant to meet the @hisheriffbucks Pippa Kirkbride and to hear the Glee Club choir. It was a hot and balmy afternoon in good company among beautiful surroundings! #multiplesclerosisawareness #neurological #charity #charityevent

Had a lovely Sunday afternoon celebrating the 40th birthday of a charity that is not only incredibly close to my heart and has helped me live my best life with #multiplesclerosis but is also a charity that I’m a patron for. Thank you to the @lordlieutenant_bucks Elizabeth Howe for hosting @chilternsneuro for a birthday garden party! It was lovely to catch up with staff, volunteers and members of the centre, which provides support and therapies for people affected by MS, #parkinsons #parkinsonsdisease and #stroke It was also brilliant to meet the @hisheriffbucks Pippa Kirkbride and to hear the Glee Club choir. It was a hot and balmy afternoon in good company among beautiful surroundings! #multiplesclerosisawareness #neurological #charity #charityevent

And just like that ten years has gone by and we’ve reached the “End of the Appeal” annual #StopMS lecture 🧡

I remember being blown away when I first found out that the @mssocietyuk was aiming to raise £100mn in ten years to fund game changing research in MS. They’ve led the way globally and we’ve achieved so much in that time, thanks to supporters, funders, scientists and more.

We are almost there. There’s just a teeny tiny (relatively!) way to go. So if you’re able to, every little will help to raise the remaining £5 million we need to hit the target! Go to the MS Society website to find out how.

Dad and I had a great time learning all about the progress we’ve made in the last ten years. I’m hopeful and inspired 🧡

@asian_ms_society #multiplesclerosisawareness #multiplesclerosis #mswarrior #msfighter #wehavems #stopms

And just like that ten years has gone by and we’ve reached the “End of the Appeal” annual #StopMS lecture 🧡

I remember being blown away when I first found out that the @mssocietyuk was aiming to raise £100mn in ten years to fund game changing research in MS. They’ve led the way globally and we’ve achieved so much in that time, thanks to supporters, funders, scientists and more.

We are almost there. There’s just a teeny tiny (relatively!) way to go. So if you’re able to, every little will help to raise the remaining £5 million we need to hit the target! Go to the MS Society website to find out how.

Dad and I had a great time learning all about the progress we’ve made in the last ten years. I’m hopeful and inspired 🧡

@asian_ms_society #multiplesclerosisawareness #multiplesclerosis #mswarrior #msfighter #wehavems #stopms

It’s that time of the year… I really don’t mind MRI scans but just over two hours in the scanner is pushing it, even for me 🙈

First hour was actually quite relaxing and I swear I dozed off a few times despite Radio Gold blasting through the headphones and the usual clunks and whirrs of the scanner.

Second hour was a bit more torturous - I realised my hair band was digging into the back of my head (but it was too late to take it off because they couldn’t move me by then), the cannula in my arm was sore, and my legs were cramping from staying still so long. Then I couldn’t wait to get out of there 😅

At least I was warmer this year. MRI metal free fashion: Crop top, vest, sweater, t-shirt & hoody (yes, I get very cold in the scanner!) and tracksuit with two pairs of socks (game changer for how warm I am in there 🥶) Swipe ⬅️ to see me modelling my MRI fashion 😂

Home, hot shower, cup of tea and plenty of water to flush out the contrast dye 🩼

How are you with MRI scans?

#desiabled #chronicillness #mswarrior #brain #msfighter #spoonie #spoonielife #multiplesclerosis #MRI #mriscan #wehavems #stopms

It’s that time of the year… I really don’t mind MRI scans but just over two hours in the scanner is pushing it, even for me 🙈

First hour was actually quite relaxing and I swear I dozed off a few times despite Radio Gold blasting through the headphones and the usual clunks and whirrs of the scanner.

Second hour was a bit more torturous - I realised my hair band was digging into the back of my head (but it was too late to take it off because they couldn’t move me by then), the cannula in my arm was sore, and my legs were cramping from staying still so long. Then I couldn’t wait to get out of there 😅

At least I was warmer this year. MRI metal free fashion: Crop top, vest, sweater, t-shirt & hoody (yes, I get very cold in the scanner!) and tracksuit with two pairs of socks (game changer for how warm I am in there 🥶) Swipe ⬅️ to see me modelling my MRI fashion 😂

Home, hot shower, cup of tea and plenty of water to flush out the contrast dye 🩼

How are you with MRI scans?

#desiabled #chronicillness #mswarrior #brain #msfighter #spoonie #spoonielife #multiplesclerosis #MRI #mriscan #wehavems #stopms

Today is @worldmsday and it's hard to believe that it's been 17 years this month since my MS diagnosis!? The right diagnosis changes lives - it can give you access to the right treatment options, support and services. That's why I'm supporting the #MyMSDiagnosis campaign this #WorldMSDay ! If you have any questions about MS then my door is always open 😊 #multiplesclerosis #mswarrior #msfighter #msawareness #desiabled

Today is @worldmsday and it's hard to believe that it's been 17 years this month since my MS diagnosis!? The right diagnosis changes lives - it can give you access to the right treatment options, support and services. That's why I'm supporting the #MyMSDiagnosis campaign this #WorldMSDay ! If you have any questions about MS then my door is always open 😊 #multiplesclerosis #mswarrior #msfighter #msawareness #desiabled

Caption this! Lol! Usually when photos are taken of me when I'm speaking I look terrible. Not because of the photographer but because I get so excited and animated, I'm usually pulling a funny face, have my eyes half closed, my hands are flailing around or just generally I look kind of silly! But this one, which was taken at MAPS EMEA last week is actually alright!? Small wins, eh?! #multiplesclerosis #mswarrior #msfighter #desiabled #chronicillness #chronicillnesswarrior #patientleader #publicspeaker #publicspeaking #patientadvocate #patientcentricity #patientadvocacy

Caption this! Lol! Usually when photos are taken of me when I'm speaking I look terrible. Not because of the photographer but because I get so excited and animated, I'm usually pulling a funny face, have my eyes half closed, my hands are flailing around or just generally I look kind of silly! But this one, which was taken at MAPS EMEA last week is actually alright!? Small wins, eh?! #multiplesclerosis #mswarrior #msfighter #desiabled #chronicillness #chronicillnesswarrior #patientleader #publicspeaker #publicspeaking #patientadvocate #patientcentricity #patientadvocacy

Receiving an #MS #multiplesclerosis diagnosis is life changing and when I was diagnosed I knew that life as I knew it would be changed forever, I just didn’t know how yet. What has helped me throughout the 17 years since my diagnosis has been the support and information provided by charities like @mulitplesclerosis_uk

🫶🏽Not only that, I’ve supported them by getting involved as a volunteer. For instance, I’ve written for the brilliant New Pathways magazine that MS-UK produces. Volunteering has changed my life in so many ways – but one of the most important has been putting me in touch with others in the MS community. #LifeIsForLiving and when you have MS, doing it with people around you that understand what you’re going through makes it so much easier!

ℹ️ MS-UK supports people living with MS every day so they can choose how they want to live with MS.

What are the things that make life worth living for you?

Whether it’s a small win, a big breakthrough, or just a moment of joy, we want to celebrate it with you.

This spring, MS-UK is launching Life is for Living – a campaign that highlights the strength, resilience, and individuality of people living with MS.

💜 Let’s share the everyday wins that matter most! 💜

@asian_ms_society #desiabled #msawareness #yolo #mswarrior #msfighter

Receiving an #MS #multiplesclerosis diagnosis is life changing and when I was diagnosed I knew that life as I knew it would be changed forever, I just didn’t know how yet. What has helped me throughout the 17 years since my diagnosis has been the support and information provided by charities like @mulitplesclerosis_uk

🫶🏽Not only that, I’ve supported them by getting involved as a volunteer. For instance, I’ve written for the brilliant New Pathways magazine that MS-UK produces. Volunteering has changed my life in so many ways – but one of the most important has been putting me in touch with others in the MS community. #LifeIsForLiving and when you have MS, doing it with people around you that understand what you’re going through makes it so much easier!

ℹ️ MS-UK supports people living with MS every day so they can choose how they want to live with MS.

What are the things that make life worth living for you?

Whether it’s a small win, a big breakthrough, or just a moment of joy, we want to celebrate it with you.

This spring, MS-UK is launching Life is for Living – a campaign that highlights the strength, resilience, and individuality of people living with MS.

💜 Let’s share the everyday wins that matter most! 💜

@asian_ms_society #desiabled #msawareness #yolo #mswarrior #msfighter

Today I was contributing to an Expert Seminar during the Spring Conference of the European Medical Writers Association (EMWA) all about risk mitigation for patients. I was presenting about how to effectively communicate risk to patients so that they can better make informed decisions. I was then part of a panel discussion with the other contributors who came from legal, regulatory and clinical practice amongst other areas. It was really enjoyable! #misinformation #healthinformation #patientadvocate #patientadvocacy #patientleader #medicalwriting #medicalinformation

Today I was contributing to an Expert Seminar during the Spring Conference of the European Medical Writers Association (EMWA) all about risk mitigation for patients. I was presenting about how to effectively communicate risk to patients so that they can better make informed decisions. I was then part of a panel discussion with the other contributors who came from legal, regulatory and clinical practice amongst other areas. It was really enjoyable! #misinformation #healthinformation #patientadvocate #patientadvocacy #patientleader #medicalwriting #medicalinformation

Mum was rocking her #teamstopMS t-shirt this week in honour of #MSAwarenessWeek because it’s important that #caregivers are also able to open up about #MSConversations #msawareness #stopms #msfighter #desiabled #mswarrior #multiplesclerosisfighter #multiplesclerosis @asian_ms_society @mssocietyuk @ms_trust @multiplesclerosis_uk @talkswithms @overcomingms @neurotherapynetwork @shiftdotms

Mum was rocking her #teamstopMS t-shirt this week in honour of #MSAwarenessWeek because it’s important that #caregivers are also able to open up about #MSConversations #msawareness #stopms #msfighter #desiabled #mswarrior #multiplesclerosisfighter #multiplesclerosis @asian_ms_society @mssocietyuk @ms_trust @multiplesclerosis_uk @talkswithms @overcomingms @neurotherapynetwork @shiftdotms

🗣️It’s hard to have an #MSConversation if you’re trying to have it in a language that you’re not fluent in or might not know at all. That’s something that we often hear about at @asian_ms_society and something that the Mayor of Islington spoke about on Monday during the #MSConversations event that I attended.

When I was diagnosed, it was hard enough trying to explain about #multiplesclerosis in English let alone in Punjabi, Hindi or Gujerati, which are the languages spoken in my family. My understanding of them is OK(ish!), I still need subtitles for Bollywood movies, and whilst I can (randomly!) read and write Punjabi, my speaking of that, Hindi and Gujerati are basic at best. I had to rely on Mum and Dad to try to explain to extended family members about my diagnosis. Even though they both speak the languages fluently, they didn’t know how to translate the medical and scientific terms. We weren’t even sure if equivalent words existed in the Asian languages!

The @mssocietyuk has information available in different languages – just search on the website. And at Asian MS we can call out to our community and members if people need support in having conversations in another language. We can’t always accommodate all requests but we do try our best! #msawareness #msawarenessweek #desiabled #mswarrior #msfighter

🗣️It’s hard to have an #MSConversation if you’re trying to have it in a language that you’re not fluent in or might not know at all. That’s something that we often hear about at @asian_ms_society and something that the Mayor of Islington spoke about on Monday during the #MSConversations event that I attended.

When I was diagnosed, it was hard enough trying to explain about #multiplesclerosis in English let alone in Punjabi, Hindi or Gujerati, which are the languages spoken in my family. My understanding of them is OK(ish!), I still need subtitles for Bollywood movies, and whilst I can (randomly!) read and write Punjabi, my speaking of that, Hindi and Gujerati are basic at best. I had to rely on Mum and Dad to try to explain to extended family members about my diagnosis. Even though they both speak the languages fluently, they didn’t know how to translate the medical and scientific terms. We weren’t even sure if equivalent words existed in the Asian languages!

The @mssocietyuk has information available in different languages – just search on the website. And at Asian MS we can call out to our community and members if people need support in having conversations in another language. We can’t always accommodate all requests but we do try our best! #msawareness #msawarenessweek #desiabled #mswarrior #msfighter

In case you didn’t know - it’s MS Awareness Week! 🧡

8 of the UK’s biggest charities have launched the campaign #MSConversations to shine a spotlight on how challenging it can be to talk about MS.

Talking about MS can be difficult but good conversations can be empowering.

The MS community has come together to share their most memorable MS conversation 🗣️

Join in and share your most memorable MS conversation in the comments. Let’s get talking! 🎙️

@mssocietyuk @multiplesclerosis_uk @talkswithms @neurotherapynetwork @overcomingms @ms_trust @mstogetherofficial @shiftdotms

In case you didn’t know - it’s MS Awareness Week! 🧡

8 of the UK’s biggest charities have launched the campaign #MSConversations to shine a spotlight on how challenging it can be to talk about MS.

Talking about MS can be difficult but good conversations can be empowering.

The MS community has come together to share their most memorable MS conversation 🗣️

Join in and share your most memorable MS conversation in the comments. Let’s get talking! 🎙️

@mssocietyuk @multiplesclerosis_uk @talkswithms @neurotherapynetwork @overcomingms @ms_trust @mstogetherofficial @shiftdotms

What an incredible start to #msawarenessweek !!! Thank you @ms_trust , a charity that I am proud to be an ambassador for, for inviting me to the MS conversation cafe at Islington Town Hall. It was a chance to meet old friends, make new ones and have some encouraging, inspiring and insightful conversations about #multiplesclerosis

We heard from @linaruns and Anjna Khurana, Mayor of Islington about the MS conversations that have been important to them.

I was especially excited to meet Lina and share stories about also being an identical twin where we both have MS (@m_chandarana wish you’d been here!)

This was a brilliant event organised for MS Awareness Week which is a collaboration of the charities @mssocietyuk @ms_trust @overcomingms @talkswithms @neurotherapynetwork @multiplesclerosis_uk @mstogetherofficial @shiftdotms

Also great to see @butyoudontlookill @multiplesclerosisfashionista @helliehalfbaked @ms_t3rri in real life - some for the first time ever, some after years! The MS community rocks and I’m proud to be a part of it 🧡❤️🩵💜💚

Watch out for more MS Awareness Week content coming soon!

#msfighter #mswarrior #multiplesclerosis #desiabled #spoonie #spoonielife #chronicillness #patientadvocacy #disability

What an incredible start to #msawarenessweek !!! Thank you @ms_trust , a charity that I am proud to be an ambassador for, for inviting me to the MS conversation cafe at Islington Town Hall. It was a chance to meet old friends, make new ones and have some encouraging, inspiring and insightful conversations about #multiplesclerosis

We heard from @linaruns and Anjna Khurana, Mayor of Islington about the MS conversations that have been important to them.

I was especially excited to meet Lina and share stories about also being an identical twin where we both have MS (@m_chandarana wish you’d been here!)

This was a brilliant event organised for MS Awareness Week which is a collaboration of the charities @mssocietyuk @ms_trust @overcomingms @talkswithms @neurotherapynetwork @multiplesclerosis_uk @mstogetherofficial @shiftdotms

Also great to see @butyoudontlookill @multiplesclerosisfashionista @helliehalfbaked @ms_t3rri in real life - some for the first time ever, some after years! The MS community rocks and I’m proud to be a part of it 🧡❤️🩵💜💚

Watch out for more MS Awareness Week content coming soon!

#msfighter #mswarrior #multiplesclerosis #desiabled #spoonie #spoonielife #chronicillness #patientadvocacy #disability

Come with me to Parliament! 🗳️

On 23rd April, I attended the @mssocietyuk parliamentary reception ahead of MS Awareness Week (28th April-4th May) in my capacity as an MS Society Ambassador, @asian_ms_society committee member and person living with MS. I was excited to talk to MPs and a members of the House of Lords to discuss the issues that matter most to people affected by MS.

Chris Law MP who has a personal connection to MS was the event sponsor. We also heard from the Minister for Social Security and Disability Sir Stephen Timms MP about what the government are doing to support people living with MS. People with MS were represented by Phoebe Day who spoke about what living with MS means for her.

We had the chance to talk to Parliamentarians about issues including financial security, employment and work, PIP assessments, mental health and the healthcare system.

People living with MS, MS Society ambassadors and celebrity supporters, and nearly 150 parliamentarians came together to make a difference for people affected by MS.

I’ve been to Parliament a number of times now and always love the experience. It was my first time in Portcullis House and I particularly loved all the portraits along the corridors. And being there we had to stop for obligatory Big Ben selfies! #desiabled #multiplesclerosis #mswarrior #MSinParliament #stopms #msfighter #msawareness #spoonie #spoonielife #patientadvocacy #chronicillness #msawarenessweek #housesofparliament #patientexperience #patientcare #disability #disabilityawareness #disabilityadvocate

Come with me to Parliament! 🗳️

On 23rd April, I attended the @mssocietyuk parliamentary reception ahead of MS Awareness Week (28th April-4th May) in my capacity as an MS Society Ambassador, @asian_ms_society committee member and person living with MS. I was excited to talk to MPs and a members of the House of Lords to discuss the issues that matter most to people affected by MS.

Chris Law MP who has a personal connection to MS was the event sponsor. We also heard from the Minister for Social Security and Disability Sir Stephen Timms MP about what the government are doing to support people living with MS. People with MS were represented by Phoebe Day who spoke about what living with MS means for her.

We had the chance to talk to Parliamentarians about issues including financial security, employment and work, PIP assessments, mental health and the healthcare system.

People living with MS, MS Society ambassadors and celebrity supporters, and nearly 150 parliamentarians came together to make a difference for people affected by MS.

I’ve been to Parliament a number of times now and always love the experience. It was my first time in Portcullis House and I particularly loved all the portraits along the corridors. And being there we had to stop for obligatory Big Ben selfies! #desiabled #multiplesclerosis #mswarrior #MSinParliament #stopms #msfighter #msawareness #spoonie #spoonielife #patientadvocacy #chronicillness #msawarenessweek #housesofparliament #patientexperience #patientcare #disability #disabilityawareness #disabilityadvocate

If you had the chance to talk to MPs about living with multiple sclerosis and/or disability, what would you like them to know❔Add your thoughts in the comments! #multiplesclerosisawareness #msawareness #multiplesclerosis #desiabled #disabled #disability #disabilityawareness #inclusion @asian_ms_society

If you had the chance to talk to MPs about living with multiple sclerosis and/or disability, what would you like them to know❔Add your thoughts in the comments! #multiplesclerosisawareness #msawareness #multiplesclerosis #desiabled #disabled #disability #disabilityawareness #inclusion @asian_ms_society

🌟 𝗦𝗔𝗩𝗘 𝗧𝗛𝗘 𝗗𝗔𝗧𝗘 🌟
Wednesday, April 30th | 4PM–5PM Paris/3PM-4PM London/10AM-11AM New York

💬 RIMS Webinar: Physical Activity: What Matters from the Patient’s Perspective?
We’re thrilled to announce a major milestone event — a webinar co-organized by RIMS and EMSP (European Multiple Sclerosis Platform), bringing the patient voice to the forefront of the conversation around physical activity and MS.

🔗 Register now: https://shorturl.at/bjfRn
📲 Or scan the QR code in the image to sign up instantly!

🎙 Meet Our Speakers
Stine Susanne Haakonsen Dahl, Nord University (Norway)
Topic: Perceptions on engagement in physical activity and experiences from participation in a new physiotherapy outdoor-group intervention

Maria Grytvik Hartvedt, Nord University (Norway)
Topic: The meaning and feasibility of physical activity while employed

🌍 Special Highlight: A Powerful Patient Advocate Voice
We're proud to welcome Trishna Bharadia, a multi-award-winning patient advocate, in collaboration with EMSP. Trishna was diagnosed with relapsing MS in 2008 and has since become a powerful voice for those living with MS. Her experience redefining physical activity in light of symptoms like fatigue and Uhthoff's phenomenon offers a unique and vital perspective. You might also recognize her from BBC1’s “Strictly Come Dancing”! Learn more about her incredible journey: www.trishnabharadia.co.uk

💡 Why You Should Attend
This webinar isn’t just another academic session — it’s a landmark moment for the MS community, where researchers, clinicians, and patient advocates come together to explore what truly matters to people living with MS when it comes to physical activity.

This is your chance to connect, share, and be inspired.

🌐Registration link also in the LinkTree via my Bio.

🌟 𝗦𝗔𝗩𝗘 𝗧𝗛𝗘 𝗗𝗔𝗧𝗘 🌟
Wednesday, April 30th | 4PM–5PM Paris/3PM-4PM London/10AM-11AM New York

💬 RIMS Webinar: Physical Activity: What Matters from the Patient’s Perspective?
We’re thrilled to announce a major milestone event — a webinar co-organized by RIMS and EMSP (European Multiple Sclerosis Platform), bringing the patient voice to the forefront of the conversation around physical activity and MS.

🔗 Register now: https://shorturl.at/bjfRn
📲 Or scan the QR code in the image to sign up instantly!

🎙 Meet Our Speakers
Stine Susanne Haakonsen Dahl, Nord University (Norway)
Topic: Perceptions on engagement in physical activity and experiences from participation in a new physiotherapy outdoor-group intervention

Maria Grytvik Hartvedt, Nord University (Norway)
Topic: The meaning and feasibility of physical activity while employed

🌍 Special Highlight: A Powerful Patient Advocate Voice
We're proud to welcome Trishna Bharadia, a multi-award-winning patient advocate, in collaboration with EMSP. Trishna was diagnosed with relapsing MS in 2008 and has since become a powerful voice for those living with MS. Her experience redefining physical activity in light of symptoms like fatigue and Uhthoff's phenomenon offers a unique and vital perspective. You might also recognize her from BBC1’s “Strictly Come Dancing”! Learn more about her incredible journey: www.trishnabharadia.co.uk

💡 Why You Should Attend
This webinar isn’t just another academic session — it’s a landmark moment for the MS community, where researchers, clinicians, and patient advocates come together to explore what truly matters to people living with MS when it comes to physical activity.

This is your chance to connect, share, and be inspired.

🌐Registration link also in the LinkTree via my Bio.

Eek! I’m in a book! 😁 It was such an honour to be asked to contribute to @frances.ryan85 new book “Who Wants Normal” which explores six facets of navigating life as a disabled woman: education, careers, body image, health, relationships and representation. It draws on her own experience, as well as from highly personal interviews with over 50 of Britain’s best known women and non-binary people with mental and physical health conditions, including Katie Piper, Tanni Grey-Thompson, Rosie Jones, Sophie Morgan, Fearne Cotton and many more… including me! 😁 Do check it out!

And for anyone reading this who is struggling with being different or doing things differently because of their disability, do you have any words of advice or support?

#mswarrior #msfighter #disabilities #disabilityadvocate #disabilityadvocacy #chronicillnesswarrior #chronicillness #desiabled #spoonie #spoonielife #spooniefamily #spoonieproblems #autoimmune #multiplesclerosis #gifted

Eek! I’m in a book! 😁 It was such an honour to be asked to contribute to @frances.ryan85 new book “Who Wants Normal” which explores six facets of navigating life as a disabled woman: education, careers, body image, health, relationships and representation. It draws on her own experience, as well as from highly personal interviews with over 50 of Britain’s best known women and non-binary people with mental and physical health conditions, including Katie Piper, Tanni Grey-Thompson, Rosie Jones, Sophie Morgan, Fearne Cotton and many more… including me! 😁 Do check it out!

And for anyone reading this who is struggling with being different or doing things differently because of their disability, do you have any words of advice or support?

#mswarrior #msfighter #disabilities #disabilityadvocate #disabilityadvocacy #chronicillnesswarrior #chronicillness #desiabled #spoonie #spoonielife #spooniefamily #spoonieproblems #autoimmune #multiplesclerosis #gifted

This was fun! Great webinar today talking about systematically integrating patients into scientific publications planning and development 📖 #patientauthor #patientauthorship #patientleader #patientadvocate #patientadvocacy #patientcentered #patientfirst #patientexperience #desiabled

This was fun! Great webinar today talking about systematically integrating patients into scientific publications planning and development 📖 #patientauthor #patientauthorship #patientleader #patientadvocate #patientadvocacy #patientcentered #patientfirst #patientexperience #desiabled

Ipsos UK and the Patient Information Forum (PIF) are creating a public-facing documentary on the topic of health misinformation. The documentary will include both the audio/video footage of lived experiences of adults in the UK, and of interviews with academics, scholars and other practitioners working within this area.

Participating in this research is completely voluntary. If you do take part, and if you give your explicit consent, audio and video recordings, and photographs of you participating may take place. These photos and/or edited versions of the recordings may be used in presentation of the research findings to Ipsos staff and/or to PIF staff and stakeholders. They may also be used in any presentations of the research findings, which may include publication in journals, on public websites, including social media sites, as well as use in conference presentations. Your name or a pseudonym may also be used in a caption with any photos, audio and film footage. Please be assured that any research footage and photographs will be held by Ipsos UK and PIF solely for the above research.

They will offer you the possibility to see the edited video footage of you before it is published publicly. It will be your decision whether you want to review the video or not.

If you have experienced health-related misinformation and would like to find out more about participating in this project, please contact Sophie Randall from the Patient Information Forum: sophie.randall@pifonline.org.uk

Ipsos UK and the Patient Information Forum (PIF) are creating a public-facing documentary on the topic of health misinformation. The documentary will include both the audio/video footage of lived experiences of adults in the UK, and of interviews with academics, scholars and other practitioners working within this area.

Participating in this research is completely voluntary. If you do take part, and if you give your explicit consent, audio and video recordings, and photographs of you participating may take place. These photos and/or edited versions of the recordings may be used in presentation of the research findings to Ipsos staff and/or to PIF staff and stakeholders. They may also be used in any presentations of the research findings, which may include publication in journals, on public websites, including social media sites, as well as use in conference presentations. Your name or a pseudonym may also be used in a caption with any photos, audio and film footage. Please be assured that any research footage and photographs will be held by Ipsos UK and PIF solely for the above research.

They will offer you the possibility to see the edited video footage of you before it is published publicly. It will be your decision whether you want to review the video or not.

If you have experienced health-related misinformation and would like to find out more about participating in this project, please contact Sophie Randall from the Patient Information Forum: sophie.randall@pifonline.org.uk

Great to see this published in Asian Leader! It’s so important that we continue to raise awareness of MS in the Asian community so that people are aware of symptoms and the support that is out there. This article was a joint effort between myself @positiveaboutms @asian_ms_society and @mssocietyuk ! Link in bio 🔗

Great to see this published in Asian Leader! It’s so important that we continue to raise awareness of MS in the Asian community so that people are aware of symptoms and the support that is out there. This article was a joint effort between myself @positiveaboutms @asian_ms_society and @mssocietyuk ! Link in bio 🔗

Ten years ago today, we danced in front of the nation! I can't believe a whole decade has gone by since this aired on BBC1!? Looking back over my Facebook memories, I'm reminded of just how overwhelmed I was by the love and support shown by everyone. These are just a few of my favourite photos (there's actually loads!) They've brought a huge smile to my face looking back through them!

Ten years ago today, we danced in front of the nation! I can't believe a whole decade has gone by since this aired on BBC1!? Looking back over my Facebook memories, I'm reminded of just how overwhelmed I was by the love and support shown by everyone. These are just a few of my favourite photos (there's actually loads!) They've brought a huge smile to my face looking back through them!

It was fab teaming up with @marriageandms @thenerveofmymultiplesclerosis @mssocietyuk @talkswithms on this webinar in my role with @asian_ms_society ! Can’t say it any better than Simone has in her caption!

Posted @withregram • @marriageandms Tonight, I had the privilege of co-hosting a webinar with @trishnabharadia of @asian_ms_society featuring panel members:

@ms_t3rri of @talkswithms
Natalie Busari of @thenerveofmymultiplesclerosis and
Sam Banks and Livi Massie from the @mssocietyuk press team

where we dove into how to get featured in the media.

We discussed the power of sharing our stories to raise awareness of multiple sclerosis and the practicalities of this.

I had the honour of rounding up the webinar with final thoughts, and when doing so I spoke about the crucial need for representation in media.

I believe its vital for people from Black and Asian communities to share their experiences and access media platforms.

When @nikobell was newly diagnosed, he often felt like the only Black man with MS because he never saw himself reflected in literature or media.

Historically, MS has been portrayed as a white woman’s disease, but we know this isn’t true and so we need to change the narrative.

My husband and I have been fortunate to share our story in local and national press, including on BBC radio, and this is important because representation matters.

For those in the global majority if you feel comfortable, I encourage you to speak up and share your story because you never know who needs to hear it and who needs to SEE YOU!

MS does not discriminate!

A big thank you to @leannk27x for facilitating:)

#RepresentationMatters #MultipleSclerosis #MSAwareness #MediaRepresentation #DiversityInHealth #ShareYourStory #MarriageandMS

It was fab teaming up with @marriageandms @thenerveofmymultiplesclerosis @mssocietyuk @talkswithms on this webinar in my role with @asian_ms_society ! Can’t say it any better than Simone has in her caption!

Posted @withregram • @marriageandms Tonight, I had the privilege of co-hosting a webinar with @trishnabharadia of @asian_ms_society featuring panel members:

@ms_t3rri of @talkswithms
Natalie Busari of @thenerveofmymultiplesclerosis and
Sam Banks and Livi Massie from the @mssocietyuk press team

where we dove into how to get featured in the media.

We discussed the power of sharing our stories to raise awareness of multiple sclerosis and the practicalities of this.

I had the honour of rounding up the webinar with final thoughts, and when doing so I spoke about the crucial need for representation in media.

I believe its vital for people from Black and Asian communities to share their experiences and access media platforms.

When @nikobell was newly diagnosed, he often felt like the only Black man with MS because he never saw himself reflected in literature or media.

Historically, MS has been portrayed as a white woman’s disease, but we know this isn’t true and so we need to change the narrative.

My husband and I have been fortunate to share our story in local and national press, including on BBC radio, and this is important because representation matters.

For those in the global majority if you feel comfortable, I encourage you to speak up and share your story because you never know who needs to hear it and who needs to SEE YOU!

MS does not discriminate!

A big thank you to @leannk27x for facilitating:)

#RepresentationMatters #MultipleSclerosis #MSAwareness #MediaRepresentation #DiversityInHealth #ShareYourStory #MarriageandMS

Earlier this week I was on Visiting Lecturer duties at Kings College London for the Patient Engagement in Strategic Medical Affairs day. All the students are studying an MSc in Medical Affairs. There was much discussion, some lightbulb moments and an altogether very productive day! Thanks as always to Dad for getting me there and supporting me throughout the day (and Mum for having dinner ready when we got home exhausted!) #caregivers come in all varieties and they are my rocks! #patientleader #patientengagement #multiplesclerosisawareness #multiplesclerosis #mswarrior #msfighter @asian_ms_society @lifeatkings #pharmaindustry #pharma #education

Earlier this week I was on Visiting Lecturer duties at Kings College London for the Patient Engagement in Strategic Medical Affairs day. All the students are studying an MSc in Medical Affairs. There was much discussion, some lightbulb moments and an altogether very productive day! Thanks as always to Dad for getting me there and supporting me throughout the day (and Mum for having dinner ready when we got home exhausted!) #caregivers come in all varieties and they are my rocks! #patientleader #patientengagement #multiplesclerosisawareness #multiplesclerosis #mswarrior #msfighter @asian_ms_society @lifeatkings #pharmaindustry #pharma #education

Because it's not every day that you're picked up by an Olympic gynmasting legend, in a Cadillac and taken to the biggest jive party in town! Ten years ago, that's what the nation was watching as they got a glimpse into some of the dance training that we were doing as part of The People's Strictly for Comic Relief, which included learning about the history of our dances! @louissmith1989 was fabulous, the jivers who were at the party were fabulous and so was the taxi driver who took me home and drove around in circles for about 20mins because the satnav didn't recognise road closures were in place but I'd fallen fast asleep (it was about 2am!?) and he thought I looked exhausted and didn't want to wake me to ask "the local" how to get me back!

Because it's not every day that you're picked up by an Olympic gynmasting legend, in a Cadillac and taken to the biggest jive party in town! Ten years ago, that's what the nation was watching as they got a glimpse into some of the dance training that we were doing as part of The People's Strictly for Comic Relief, which included learning about the history of our dances! @louissmith1989 was fabulous, the jivers who were at the party were fabulous and so was the taxi driver who took me home and drove around in circles for about 20mins because the satnav didn't recognise road closures were in place but I'd fallen fast asleep (it was about 2am!?) and he thought I looked exhausted and didn't want to wake me to ask "the local" how to get me back!

Ten years ago today, whilst me and the People's Strictly (Strictly Come Dancing/Dancing With The Stars) gang were getting ready to record the "as live" show, the rest of the nation was being treated to Episode 2 of the series being aired, where they got to "meet" me for the first time and learn about my multiple sclerosis diagnosis.

It was very emotional as people learned about the impact that MS had on my life and the lives of those around me, as well as my advocacy work. They also got to see me look like I was about to have a heart attack when I was suprised during what I was to later discover was a fake Zumba DVD recording.

I can't begin to explain just what a pivotal moment in my life that night was. The outpouring of support from everyone was overwhelming. I've never really told anyone but the unit director that day told me that they were seriously concerned I was going to try to run away! When everyone started to do what was obviously a choreographed routine, my stomach dropped and I thought I must've missed some instructions and I was stood not knowing what I was doing, looking like a complete lemon in the middle of the room and ruining the DVD for everyone!? And then a feeling of sheer panic crept in when I turned around to look for my sisters and they'd disappeared!?!! My sisters said they felt so terrible because they'd been whisked away backstage to watch on the monitors (without me knowing) and they could see the panic in my eyes even though I was thinking "keep smiling Trishna, they always say if you're filming something to keep smiling even if chaos is descending around you"!?

Luckily it wasn't long until Strictly professional dancer @natalielowe_strictly_fitsteps and Olympic gymnast legend (and previous Strictly winner!) @louissmith1989 turned up and I started to realise that something big was happening!

Ten years ago today, whilst me and the People's Strictly (Strictly Come Dancing/Dancing With The Stars) gang were getting ready to record the "as live" show, the rest of the nation was being treated to Episode 2 of the series being aired, where they got to "meet" me for the first time and learn about my multiple sclerosis diagnosis.

It was very emotional as people learned about the impact that MS had on my life and the lives of those around me, as well as my advocacy work. They also got to see me look like I was about to have a heart attack when I was suprised during what I was to later discover was a fake Zumba DVD recording.

I can't begin to explain just what a pivotal moment in my life that night was. The outpouring of support from everyone was overwhelming. I've never really told anyone but the unit director that day told me that they were seriously concerned I was going to try to run away! When everyone started to do what was obviously a choreographed routine, my stomach dropped and I thought I must've missed some instructions and I was stood not knowing what I was doing, looking like a complete lemon in the middle of the room and ruining the DVD for everyone!? And then a feeling of sheer panic crept in when I turned around to look for my sisters and they'd disappeared!?!! My sisters said they felt so terrible because they'd been whisked away backstage to watch on the monitors (without me knowing) and they could see the panic in my eyes even though I was thinking "keep smiling Trishna, they always say if you're filming something to keep smiling even if chaos is descending around you"!?

Luckily it wasn't long until Strictly professional dancer @natalielowe_strictly_fitsteps and Olympic gymnast legend (and previous Strictly winner!) @louissmith1989 turned up and I started to realise that something big was happening!

Posted @withregram • @mssocietyuk Today is International Wheelchair Day! ♿

We know that sometimes it can be challenging to adapt to using a wheelchair. But wheelchairs can give us back some much-needed independence.

So we want to know, has using a wheelchair impacted your life? Let us know in the comments! 📝

#MSSociety #MultipleSclerosis #InternationalWheelchairDay

Posted @withregram • @mssocietyuk Today is International Wheelchair Day! ♿

We know that sometimes it can be challenging to adapt to using a wheelchair. But wheelchairs can give us back some much-needed independence.

So we want to know, has using a wheelchair impacted your life? Let us know in the comments! 📝

#MSSociety #MultipleSclerosis #InternationalWheelchairDay

I love doing what I do. Patient advocacy and engagement is what I feel I was meant to do in life. People talk about how inspiring and rewarding it can be. And it is. But it’s also tough. And this is the bit that people often don’t see. As advocates we are surrounded by people who are facing often really difficult health challenges. They’re our tribe, our community. But it also means we experience loss probably much more and more often than the average person. Just since the start of this year, there have been at least four or five advocates that I knew or followed that have passed away. And today I found out we’ve lost another. I’ve had a cry and my thoughts always first go out to their loved ones. So if you’re an advocate too, I see you. I understand the emotional toll it can take. We are here for each other ❤️

I love doing what I do. Patient advocacy and engagement is what I feel I was meant to do in life. People talk about how inspiring and rewarding it can be. And it is. But it’s also tough. And this is the bit that people often don’t see. As advocates we are surrounded by people who are facing often really difficult health challenges. They’re our tribe, our community. But it also means we experience loss probably much more and more often than the average person. Just since the start of this year, there have been at least four or five advocates that I knew or followed that have passed away. And today I found out we’ve lost another. I’ve had a cry and my thoughts always first go out to their loved ones. So if you’re an advocate too, I see you. I understand the emotional toll it can take. We are here for each other ❤️

During the course of doing Strictly Come Dancing, I got to meet lots of celebrities but this was definitely one of the biggest highlights! This time ten years ago I was at BBC Broadcasting House to appear on The One Show, as me and The People's Strictly gang were being interviewed all about the start of the show (the first episode was airing that evening). I had been getting text messages in the car on the way from @annakennedyobe saying that there was loads of girls outside the building because apparently the @backstreetboys were being interviewed on Radio 1. Never in a million years did I think they'd be exiting the building as I was entering!? I totally lost my cool, got so flustered I couldn't work my phone properly and Kevin was so lovely and offered to take the pic instead 😂The first thing I did afterwards was call up my sisters and say LOOK WHO I MET!?!!! (They couldn't believe it either!?) The People's Strictly gang had to put up with me talking about it all night 😂 It took me back to being a teenager again! 😍 #backstreetboys #strictlycomedancing

During the course of doing Strictly Come Dancing, I got to meet lots of celebrities but this was definitely one of the biggest highlights! This time ten years ago I was at BBC Broadcasting House to appear on The One Show, as me and The People's Strictly gang were being interviewed all about the start of the show (the first episode was airing that evening). I had been getting text messages in the car on the way from @annakennedyobe saying that there was loads of girls outside the building because apparently the @backstreetboys were being interviewed on Radio 1. Never in a million years did I think they'd be exiting the building as I was entering!? I totally lost my cool, got so flustered I couldn't work my phone properly and Kevin was so lovely and offered to take the pic instead 😂The first thing I did afterwards was call up my sisters and say LOOK WHO I MET!?!!! (They couldn't believe it either!?) The People's Strictly gang had to put up with me talking about it all night 😂 It took me back to being a teenager again! 😍 #backstreetboys #strictlycomedancing

This time ten years ago, I was at BBC Broadcasting House with The People's Strictly gang to promote the programme on the BBC's The One Show. It was nerve wracking being on live telly on such a popular programme but everyone was lovely and we all had a brilliant time! Definitely one of the many highlights!

This time ten years ago, I was at BBC Broadcasting House with The People's Strictly gang to promote the programme on the BBC's The One Show. It was nerve wracking being on live telly on such a popular programme but everyone was lovely and we all had a brilliant time! Definitely one of the many highlights!

Looking forward to co-hosting this! Link is also in the Linktree in my bio!

Posted @withregram • @asian_ms_society … In this webinar @asian_ms_society, @thenerveofmymultiplesclerosis, @talkswithms and @marriageandms will be talking to the @mssocietyuk’s Press Team, to learn about what is involved in sharing your experience of MS with the wider public via the media.

We will explore what is involved in providing your story as a case study, what media channels you could share your story on, privacy/anonymity for people who would like to share their story but don’t want to be named, and much much more!

Join us for this brilliant opportunity to learn more about what the Press Team does and how you can be a part of raising awareness about MS. It’s important that we have better representation in the media of all people affected by MS, including those from the Asian and Black MS community. So please join us!

Link to register is in our Instagram Bio and below…

See you there! 🧡

https://www.eventbrite.co.uk/e/learn-about-sharing-your-ms-experience-in-the-media-webinar-lwuk-tickets-1227722433849?aff=oddtdtcreator

Looking forward to co-hosting this! Link is also in the Linktree in my bio!

Posted @withregram • @asian_ms_society … In this webinar @asian_ms_society, @thenerveofmymultiplesclerosis, @talkswithms and @marriageandms will be talking to the @mssocietyuk’s Press Team, to learn about what is involved in sharing your experience of MS with the wider public via the media.

We will explore what is involved in providing your story as a case study, what media channels you could share your story on, privacy/anonymity for people who would like to share their story but don’t want to be named, and much much more!

Join us for this brilliant opportunity to learn more about what the Press Team does and how you can be a part of raising awareness about MS. It’s important that we have better representation in the media of all people affected by MS, including those from the Asian and Black MS community. So please join us!

Link to register is in our Instagram Bio and below…

See you there! 🧡

https://www.eventbrite.co.uk/e/learn-about-sharing-your-ms-experience-in-the-media-webinar-lwuk-tickets-1227722433849?aff=oddtdtcreator

TEN years ago today I was at Wembley Arena with the rest of the People's Strictly team, dancing for @craigrevel so that he could give me and everyone else tips for the rest of our training, before we danced for the nation. He told me I had to sort out my "free arm" because it was flapping around doing nothing in particular 😅 (He is actually truly lovely though! Lol!) The day was topped off by @aljazskorjanec and I doing a photo shoot that would later appear in the Radio Times. Getting to experience all of this is really a thing of dreams. I look back now and wonder whether it was pure adrenaline that got me through - on this day my pick-up time was around 6am!? If I had the chance though, I would do it all again! #strictlycomedancing #mswarrior #msfighter #multiplesclerosis #dancing #dance @asian_ms_society #disabled #disability #disabilityawareness

TEN years ago today I was at Wembley Arena with the rest of the People's Strictly team, dancing for @craigrevel so that he could give me and everyone else tips for the rest of our training, before we danced for the nation. He told me I had to sort out my "free arm" because it was flapping around doing nothing in particular 😅 (He is actually truly lovely though! Lol!) The day was topped off by @aljazskorjanec and I doing a photo shoot that would later appear in the Radio Times. Getting to experience all of this is really a thing of dreams. I look back now and wonder whether it was pure adrenaline that got me through - on this day my pick-up time was around 6am!? If I had the chance though, I would do it all again! #strictlycomedancing #mswarrior #msfighter #multiplesclerosis #dancing #dance @asian_ms_society #disabled #disability #disabilityawareness

#ISMPPEurope was a blast! This is the European meeting for the International Society for Medical Publications Professionals. I was on the planning committee, co-authored research posters and was a subject matter expert for a hackathon on Good Publication Practice. It was two days of wonderful content and wonderful people like @emmajdoble @nmppie @laurencewoollard @simonrstones @a_rxsnbrg @mercyshibemba @matteagles_parkylife @urbanmiff ❤️

#ISMPPEurope was a blast! This is the European meeting for the International Society for Medical Publications Professionals. I was on the planning committee, co-authored research posters and was a subject matter expert for a hackathon on Good Publication Practice. It was two days of wonderful content and wonderful people like @emmajdoble @nmppie @laurencewoollard @simonrstones @a_rxsnbrg @mercyshibemba @matteagles_parkylife @urbanmiff ❤️

I said I’d bring you Part 2 and here it is! I sit down and chat with Anupama from Enago Life Sciences all about #patientadvocacy and #patientengagement Check it out in the LinkTree in my bio! ☑️

I said I’d bring you Part 2 and here it is! I sit down and chat with Anupama from Enago Life Sciences all about #patientadvocacy and #patientengagement Check it out in the LinkTree in my bio! ☑️

Whatever you’re doing today, whether you’re celebrating, it’s just a regular day or you’re going through a tough time, I hope this festive season brings you love, light and good health 🎄

Whatever you’re doing today, whether you’re celebrating, it’s just a regular day or you’re going through a tough time, I hope this festive season brings you love, light and good health 🎄

Really enjoyed chatting with Anupama from Enago Life Sciences about all things patient advocacy. Link to the full interview is in my bio and Part 2 will be coming soon! 📢 #desiabled #patientadvocacy #disabilityawareness #disability #patientleader #patientadvocacy #patientadvocate #multiplesclerosis #multiplesclerosisawareness #msfighter #mswarrior #multiplesclerosisfighter #multiplesclerosiswarrior

Really enjoyed chatting with Anupama from Enago Life Sciences about all things patient advocacy. Link to the full interview is in my bio and Part 2 will be coming soon! 📢 #desiabled #patientadvocacy #disabilityawareness #disability #patientleader #patientadvocacy #patientadvocate #multiplesclerosis #multiplesclerosisawareness #msfighter #mswarrior #multiplesclerosisfighter #multiplesclerosiswarrior

Can you help support the @ms_trust this Christmas? 🎄

https://mstrust.org.uk/get-involved/christmas-appeal

#multiplesclerosis #desiabled #mswarrior #msfighter #msadvocacy #msawareness #multiplesclerosisawareness #multiplesclerosisfighter #multiplesclerosiswarrior

Can you help support the @ms_trust this Christmas? 🎄

https://mstrust.org.uk/get-involved/christmas-appeal

#multiplesclerosis #desiabled #mswarrior #msfighter #msadvocacy #msawareness #multiplesclerosisawareness #multiplesclerosisfighter #multiplesclerosiswarrior

A few weeks ago Liz Clark and I, as co-chairs of the Working with Patients & Communities Forum, convened one of the Deep Dive sessions at the @facultypharmmed annual symposium. The session was about patient engagement in the development of target product profiles (TPPs) and we had some fantastic speakers and faciliators in Constance Takawira Lorna Allen Rebecca Holmes Marta Garcia Manrique and Emma Harvey BSc MBBS MRCP FFPM Here I’m reporting back in full plenary what the main takeaways were from the session.

➡️Early & continous engagement
➡️Transparency & trust
➡️Multi-stakeholder representation
➡️Adequate resourcing

#patientcentricty #patientcentric #patientcentred #patientengagement #pharma #pharmaceuticals #medicines #patientadvocacy #patientadvocate #drugdevelopment #clinicalresearch #research #fpm2024 #desiabled

A few weeks ago Liz Clark and I, as co-chairs of the Working with Patients & Communities Forum, convened one of the Deep Dive sessions at the @facultypharmmed annual symposium. The session was about patient engagement in the development of target product profiles (TPPs) and we had some fantastic speakers and faciliators in Constance Takawira Lorna Allen Rebecca Holmes Marta Garcia Manrique and Emma Harvey BSc MBBS MRCP FFPM Here I’m reporting back in full plenary what the main takeaways were from the session.

➡️Early & continous engagement
➡️Transparency & trust
➡️Multi-stakeholder representation
➡️Adequate resourcing

#patientcentricty #patientcentric #patientcentred #patientengagement #pharma #pharmaceuticals #medicines #patientadvocacy #patientadvocate #drugdevelopment #clinicalresearch #research #fpm2024 #desiabled

The @facultypharmmed annual symposium is always a fabulous event. I learn so much and have been honoured to have spoken at previous events. This year I had the chance to organise a session and we deep dived into getting patients involved in the development of target product profiles (what are the key characteristics of a treatment that patients would want to see) with representation from @cftrustuk
It was held at @theroyalsociety which is a beautiful venue full of history and wonder. There was also an amazing keynote from Professor Jonathan Van-Tam who many in the U.K. will recognise from the telly during the Covid-19 pandemic. Thanks to all who contributed and made it such a wonderful day! #FPMSymposium24 #patientexperience #patientadvocacy #patientengagement #spoonie #spoonielife #chronicillness #mswarrior #msfighter #autoimmunewarrior

The @facultypharmmed annual symposium is always a fabulous event. I learn so much and have been honoured to have spoken at previous events. This year I had the chance to organise a session and we deep dived into getting patients involved in the development of target product profiles (what are the key characteristics of a treatment that patients would want to see) with representation from @cftrustuk
It was held at @theroyalsociety which is a beautiful venue full of history and wonder. There was also an amazing keynote from Professor Jonathan Van-Tam who many in the U.K. will recognise from the telly during the Covid-19 pandemic. Thanks to all who contributed and made it such a wonderful day! #FPMSymposium24 #patientexperience #patientadvocacy #patientengagement #spoonie #spoonielife #chronicillness #mswarrior #msfighter #autoimmunewarrior

Super proud of Dad!!! I’m usually sharing advocacy work that I’ve been doing but today I just have to share how proud I am of my Dad. This week he has done two radio interviews (he is in his mid-70s and had never been interviewed on the radio ever before!) all about his experiences of being diagnosed with prostate cancer. One of them was for an English speaking radio show but today he was helping to combat the stigma and lack of awareness associated with prostate cancer in the Asian community, giving an interview on Desi Radio primarily targeted at the Punjabi-speaking community. Here he is talking about the side effects of his prostatectomy and the importance of pelvic floor exercises. THIS IS A VERY PROUD DAUGHTER MOMENT!!! ❤️

Super proud of Dad!!! I’m usually sharing advocacy work that I’ve been doing but today I just have to share how proud I am of my Dad. This week he has done two radio interviews (he is in his mid-70s and had never been interviewed on the radio ever before!) all about his experiences of being diagnosed with prostate cancer. One of them was for an English speaking radio show but today he was helping to combat the stigma and lack of awareness associated with prostate cancer in the Asian community, giving an interview on Desi Radio primarily targeted at the Punjabi-speaking community. Here he is talking about the side effects of his prostatectomy and the importance of pelvic floor exercises. THIS IS A VERY PROUD DAUGHTER MOMENT!!! ❤️

Great to be able to share this paper that I co-authored and that has been published in the European Journal of Neurology! Link to the full article is in the LinkTree in my bio.

https://onlinelibrary.wiley.com/doi/10.1111/ene.16526

@asian_ms_society #desiabled #mswareness #mswarrior #multiplesclerosis #patientadvocate #patientadvocacy #spoonie #spoonielife

Great to be able to share this paper that I co-authored and that has been published in the European Journal of Neurology! Link to the full article is in the LinkTree in my bio.

https://onlinelibrary.wiley.com/doi/10.1111/ene.16526

@asian_ms_society #desiabled #mswareness #mswarrior #multiplesclerosis #patientadvocate #patientadvocacy #spoonie #spoonielife

It was great to be interviewed by @optimstic_kb for her blog! You can access it via the Linktree in my bio 📝

Posted @withregram • @optimstic_kb Last year, I had the privilege of meeting Trishna Bharadia, a multi-award-winning patient engagement consultant and advocate with 15 years of experience in the field, who also lives with MS. We chatted about about our experiences with MS, what it means to be a patient advocate, why it’s important to advocate for yourself, and different pathways in patient advocacy. ⁠
⁠
I left our first conversation so incredibly inspired that I wanted to do a more in-depth interview with her. Head to the blog to read her insights on what patient advocacy means to her.⁠
⁠
#multiplesclerosis #msadvocate #invisibleillness #invisibledisability #multiplesclerosisawareness #spoonie #spoonielife⁠
⁠

It was great to be interviewed by @optimstic_kb for her blog! You can access it via the Linktree in my bio 📝

Posted @withregram • @optimstic_kb Last year, I had the privilege of meeting Trishna Bharadia, a multi-award-winning patient engagement consultant and advocate with 15 years of experience in the field, who also lives with MS. We chatted about about our experiences with MS, what it means to be a patient advocate, why it’s important to advocate for yourself, and different pathways in patient advocacy. ⁠
⁠
I left our first conversation so incredibly inspired that I wanted to do a more in-depth interview with her. Head to the blog to read her insights on what patient advocacy means to her.⁠
⁠
#multiplesclerosis #msadvocate #invisibleillness #invisibledisability #multiplesclerosisawareness #spoonie #spoonielife⁠
⁠

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